Pudendal Pain to Purpose Foundation was created so that people living with pudendal neuralgia and neuropathy would have more than scattered information and a lonely search for answers.
We bring together education, peer connection, care-navigation resources, awareness and hope for people affected by a condition that is often difficult to explain and too easy to dismiss.
Founder John M. Kilgore II knows pudendal pain personally. As he searched for understanding and connected with others facing similar symptoms, he saw the same needs appear again and again: clear information, informed care options, people who genuinely understood and support during the darkest moments.
John created a Facebook support group where people could talk openly and learn from one another’s experiences. That community grew to more than 3,000 members.
Pudendal Pain to Purpose Foundation grew from the same conviction—that pain should not be met with silence, shame or isolation, and that lived experience can be turned into meaningful support for someone else.
Our mission is to improve the lives of people affected by pudendal neuralgia and neuropathy through reliable education, peer connection, awareness, care-navigation resources, practical assistance and suicide-prevention support.
We envision a future in which pudendal pain is better understood, people reach informed care sooner and no one is left to face the condition without credible information, community or hope.
We provide treatment overviews, provider-search resources and practical questions people can use when evaluating possible next steps.
We support respectful peer connection for patients, caregivers and families while keeping personal experience separate from medical advice.
We organize source-backed health information in clear language and help people prepare for better conversations with qualified professionals.
We envision a future in which pudendal pain is better understood, people reach informed care sooner and no one is left to face the condition without credible information, community or hope.
We help patients and advocates give pudendal pain a name, a visible symbol and a place in broader conversations about pelvic and chronic pain.
We connect people in emotional crisis with immediate professional support and promote messages centered on connection, survival and the possibility of a next step.
Pudendal Pain to Purpose Foundation is led by people committed to turning lived experience, professional relationships and community support into responsible action.
Founder & President
Secretary
Whether you are living with pudendal pain, supporting someone you love or looking for a meaningful way to help, there is a place for you in this mission. Together, we can make reliable information easier to find, strengthen a community that understands and ensure fewer people face this condition alone.
